Autoimmune Thyroid Disease Test

Your thyroid gland controls many body processes, such as the rate of metabolism. This butterfly-shaped endocrine gland manufactures and secretes thyroxin (T4) in response to the release of TSH from the pituitary gland. The thyroid responds by producing and secreting the needed amount of thyroid hormone into the blood stream.

If there is not enough T4 in the system, it is classified as hypothyroidism. On the other hand, if there is too much thyroid hormone it is called hyperthyroidism. Both conditions are autoimmune diseases denoting thyroid hormone imbalance that can show outward signs of it’s existence, such as thyroid eye disease.

What Is Thyroid Eye Disease?

Thyroid eye disease, or TED, is characterized by the protrusion of the eyeballs. It is most prevalent in Graves disease, caused by an overproduction of thyroid hormone or hyperthyroidism, also known as overactive thyroid. This condition also presents itself when thyroid hormone levels are normal (euthyroid), as well as when there is inefficient thyroid hormone (hypothyroidism) present in the body.

Frequently Asked Questions

  1. QUESTION:
    Will a typical blood test for autoimmune diseases detect thyroid Graves Disease?
    I had a blood test a few years ago to detect for autoimmune diseases. Could I have developed Graves since then?

    • ANSWER:

  2. QUESTION:
    Help with Blood test results?
    So 2 weeks ago I went into the doctor and was tested for lupus, autoimmune thyroid disease and was also asked to get an HIV test just to rule it out. I was told by the nurse in the lab that the results should come back in 2-3 day and that they would call me. The office is a private office and they run all blood work in the same building. It is going on 2 weeks and nobody has called. I have tried calling and leaving messages and no one returns my phone call. I called the lab today and was told my result have been there and they could mall me my results but could not tell me because she’s not the doctor. I have had blood taken in the past and I always get my results within 3 days tops. Do you think if I had anything serious like HIV they would have called asap. I mean it’s their job to tell me these things. Or have the local health department tell me. Any input would be great thanks.

    • ANSWER:

  3. QUESTION:
    What blood test must be do to find if alopecia is androgenic or autoimmune?
    I am the only person in my family with this disease and the hormons tests are o.k but I have many simptoms for thyroid disease.
    Have you any advice?
    Thanks.

    • ANSWER:
      As far as I am aware Alopecia is not autoimmune. I have known people who have had the condition for five years and then suddenly it has vanished. Some Docs say it is stress, others bacterial the list is endless but your hair will eventually grow back, when I cannot say.

  4. QUESTION:
    Questions about Thyroid tests?
    Okay, so my psychiatrist ordered a Thyroid test last week and I just got the results today. My TSH is pretty high, (7. something), and I have to make an appointment with a doctor to find out what it means. But, hospitals terrify me, and I’m a pretty big hypochondriac, so I was hoping someone could clear up a few things for me before I do that.

    I’ve been researching thyroid disorders/diseases, but all it’s done is make me paranoid that I have cancer/an autoimmune disease. So:

    What kind of tests do they run to find out this kind of thing? I’ve already had a blood test, but will they do anything more extreme, like a biopsy or something?
    Also, how bad is a TSH level that’s over seven?

    By the way, I’m sixteen and a girl if it’s relevant.
    Thanks.
    Thanks so much. They tested my T3 and T4 but I don’t have the sheet and forgot the levels… one of them was high though. Thanks for your help.

    • ANSWER:
      Hi. You usually only need blood work done to diagnose a Thyroid problem. They need to run a TSH, FT3, FT4, and a Antibodies test. But with a TSH at 7, you probably have a Thyroid problem. Mine was 4.5 when i was diagnosed, and i was pretty sick. If they examine your Thyroid, and feel any lumps, then there is a possibility you could need a biopsy. Don’t get ahead of yourself, first find out if that’s really what you have, then continue from there. You will have to go on medication ( most likely for the rest of your life ) if you are diagnosed with Thyroid disease. Make sure you have a good doctor that listens to you, and is easy to work with. That’s very important when you have this disease. Good luck, and Take care :-)

  5. QUESTION:
    thyroid test results?
    I was having some symptoms (heart palps and very hot at times) and the test results are :
    total t4 is 14.2 H
    TSH 3rd Generation .02

    I know that a low tsh means the thyroid is saying stop…no more and indicative of a hyperT. I have another autoimmune disease (ITP) an am wondering with these numbers will they require treatment or can it just be monitored. What exactly is the range where it needs to be treated or is that based on the extreme of symptoms?

    • ANSWER:
      There are three common reasons for hyperthyroidism:
      Grave’s disease; check for elevated TSI antibodies, diffuse goiter and elevated RAI uptake;
      The hyper-stage of thyroiditis:elevated TPO antibodies can be present, reduced RAI uptake; patchy distribution of RAI tracer in thyroid, firm goiter
      Multinodular toxic goiter; patchy RAI uptake, with hot and cold nodules, thyroid nodules are present, no antibodies.
      Therefore RAI uptake test with image and antibodies testing can be the next step.

  6. QUESTION:
    I have some weird thyroid test results…?
    I’ve been having headaches since I was like 13. They are terrible migraines, all over (not concentrated on one side.) They do not seem to be related with my period at all. When I get them I’m sensitive to light and sound, and see little circles of color in my vision for a split second. I don’t have any medication for them because I’ve “failed” Imitrex, Emerge, and Amitriptyline. I took Topamax and it worked, but I grew used to it and they upped my dosage. Then I experienced the side effects: tingling in arms and legs, extreme loss of appetite, and craziness.

    Now I take some aspirin if it’s really really bad, but I guess I’m getting used to living with pain. In a bad week I make have a headache 5 out of 7 days. At best, maybe only a headache once a week.

    So I just went to the doctor 2 days ago because my hair had been falling out– a lot. It’s happened to me before, about a year ago. It wasn’t from just one spot, it was from all over. Doctors chalked it up to stress and moved on. After awhile it stopped, and since then it’s been growing back really well. This time, my thyroid test came back with extremely abnormally high numbers, and I also had a low platelet count. Before, I’ve had tests with “weird” numbers that would indicate an autoimmune disease, and some other weird ones about inflammation. No one ever really followed up on any of this.

    I don’t really have any of the symptoms that would go with most hyper-thyroid things. I tested negative for lupus (but they thought maybe I could have had it when I was younger??) I’ve never really gotten any clear answer, and I feel like there’s something there that is a greater over-arching problem… and we just need to connect the dots. Of course I could be wrong/ a hypochondriac, but I really feel sick and I just want to feel better.

    No diagnoses, but any ideas you can offer would be a lot of help. Thanks!

    • ANSWER:
      I don’t see any mysteries or anything “weird” here. You have Hashimoto’s. Everything you wrote adds up to Hashimoto’s. Get tested for it and get into treatment. Do not stand for any further lack of follow up. I would actually fire any doctor who failed to follow up on any out of range test results that you have had, and get a new doctor.

  7. QUESTION:
    Should an antibody thyroid test be run more than once if found negative?
    HI,
    My Endrochronologist will not run a antibody thyroid test because she said she ran one two years ago and it was normal.
    Can the results change since then . . especially since I am hyporthyroid and also have other autoimmune diseases like Pernicious anemia and Sjrogens?

    Thank you,
    Sue

    • ANSWER:
      Absolutely it can change…mine tested negative 6 months before my positive result. Plus, I’ve heard that once you get one autoimmune disease you will get others. See a new endo.

  8. QUESTION:
    Can you have two autoimmune disease?
    Okay…..So I have Crohn’s Disease! Today I went to the doctors because I was running a fever of 103.4, sore throat, ears were bothering me….Like a common cold but at are college you can’t go to class if you have higher then a 99.9 fever! So I needed a doctors note! So when I get to the doctors the doctor does Strep test and Mono both come back negative! But he said that my Thyroid was swollen…So they did an ultrasound on my neck it came back that I have cyst on the thyroid and it was swollen! With swollen thyroid would be autoimmune? and Crohn’s is said to be an autoimmune? Has anyone hear of someone having both?

    • ANSWER:

  9. QUESTION:
    (10 points if you help)(Auto immune diseases)Can you give me any advice?
    I have 3 or 4 Autoimmune disease. Fibromialgia, Hashimotoe(thyroid diseases), Candida, and now my doc thinks I have Lupus. The blood test came back positive, but they can sometimes be wrong( thats what my doc said) Any advice from other people???? How to cope? Things that helps the diseases? Anything?
    I eat very healthy. Little Gluten, no white flour or refined sugar. No artifal stuff.

    • ANSWER:
      Yes, I have Chronic Fatigue Syndrome and Hashimoto as well. What I found to help more than all the medicine they will give you is to stop eating chemicals in your food. MSG (mono sodium glutamate) can mean trouble for you, I know it does for me. MSG has many name and a little research will give you answers. It stays in your system for a week. The turning point in my illness is when I stayed three weeks at the Optimum Health Institute in San Diego.

  10. QUESTION:
    Equine thyroid problems?
    Ok the balding donkey saga #1083034843

    So far 2 steriod shots aren’t working, over a month time frame. The shots were given 2wks apart. We should of seen hair growing by now or at least reducing the speed at which he’s losing it. Annnnndddd hes still losing it at the same rate.

    My vet refuses to test thyroid, he said that its rare in equines and thats not his problem. Plus it fluctuates so much that one minute he could be hypo/hyper and the next normal.

    I am thinking that I might haul him to another vet, request the thyroid and not sure if there is a blood test to decipher exactly what autoimmune disease it is… but anyone have experience with thyroid ridden problem animals?

    I am calling the 2nd vet next week, this main vet is the main equine vet here in our city and great, and I don’t doubt his expertise, but i just need this donkey to grow hair so I don’t have to buy some donkey toupee for him soon.

    Thanks

    • ANSWER:
      I have thyroid issues and have since 1976. I am hypo.
      I then had a total thyroidectomy done.
      Whenever I go get my thyroid checked they have a cow. It’s low..off the charts low. I can take my pills correctly for months straight and I will always test off the charts low. (thats me though)

      When I was diagnosed, they did a Thyroid panel. It showed low.
      They tested me again in a month. Still low.
      Tested again a week later. Yup, you guessed it. Low.
      I was sent to get a Scan with an Iodine uptake. This was back in 1976. I had Hashimotis ( a goiter ).

      You cannot fluctuate from Hypo to Hyper in a stroke of a pen.
      If you are Hypo…your thyroid is not producing enough of the hormones..or none at all. It works hard to try and just can’t. If it works too hard the thyroid swells and then you are considered Hashimotis.
      If you are Hyper..your thyroid is nuts and produces way too much. More than your body can use.
      You will NEVER test too low if you are HYPER.
      You will NEVER test too high if you are HYPO.
      At least since 1976 I have never and neither have my mother or siblings ever tested the opposite of what they are.
      Neither have any of the hundreds of patients I have dealt with in the hospital that were thyroid positive.

      What I am saying is…I can walk into any Dr. office, have a test done now and it will show that I have a thyroid issue. My mother will show up on the first time too.
      Now..My two sisters are very slight border thyroid issues so they will run a few tests to be sure.

      See what I mean? If your mule is severe hypo it will show. His thyroid is not producing and no matter when you take it, it should show up low. If he had just slight symptoms, then maybe the test would show borderline and the vet would want to re-run.

      Causes of Alopecia:
      fungal (obvious)
      Selenium poisoning
      radiation
      congenital defect
      hormone imbalance
      burns
      chemical exposure

      Hair loss is permanent if the hair follicle is damaged and scar tissue forms around it.

      SO..what would I do in your shoes? Tell my vet “I insist on a thyroid test. Please run one” if you feel uncomfy demanding for one..get a new vet. :)
      Run it..it will make you feel better and quit wasting money on this current vets revisits. (He’s making $ off you)

      edit: I do have to add that once the test shows he is hypo/hyper thyroid they will have to keep testing a few times to figure out a dosage to keep him in balance. That is why there are so many tests. Not to find it, but to figure out the dosage.

  11. QUESTION:
    Do I have an autoimmune disease?
    I AM 29 YEARS OLD WITH A FAMILY HISTORY OF AUTOIMMUNE DISEASES.(SARCOIDOSIS, REYNOLDS,CHRONES,RA ETC.) I FOUND OUT RECENTLY THAT I HAVE A THYROID PROBLEM. THE DOCTOR OVER MEDICATED ME CAUSING MY FT4 TO ELEVATE. DURING THAT TIME I HAD BODY ACHES (FELT LIKE THE FLU WITH OUT THE FEVER AND SNEEZING). I NOTICE I KEPT DROPPING EVERYTHING. I DECIDED TO DO A ANA TEST. IT TURNED UP POSITIVE NUCLEOLAR PATTER 1:320 WITH SOME CYTOPLASMIC STAINING. MY THYROID IS LOWERED WITH THE SAME SYMPTOMS. I HAVE A ESR OF 105. I WANT TO GO TO THE DOCTOR BUT FEAR THAT I WILL BE WASTING MY TIME. ON THE OTHER HAND I WONDER IF I MAY HAVE A AUTOIMMUNE DISEASE.

    • ANSWER:
      With a family history of autoimmune diseases, it is best to be checked out by a medical specialist. If you are leery about returning to your doctor, than find another physician that specializes in Endocrinology (the study of the chemicals/hormones in the body.) With test results as you specified, make sure you take your records when you schedule a consultation with the specialist.

  12. QUESTION:
    autoimmune disease help. ?
    was diagnosed at age 31 with Graves Disease. The symptoms came on suddenly and severely. I was put on the medications used for Graves Disease and also the symptoms the Graves Disease was causing such as high blood pressure. Then I started getting severe hives to the point of having to be rushed to the ER because they were in my throat.

    Three endocrinologists later it was determined by the majority that I was allergic to the Graves Disease medication and I should get radioactive iodine to destroy my thyroid. I was told that my increased heart rate, increased blood pressure etc. was life-threatening so I consented to the RAI.

    I am now 35 years old and the journy to finding out exactly what is wrong with me continues. My thyroid eventually bottomed out after receiving the RAI, so I had all of those symptoms. I am currently on Synthroid 175 MCG. Then I was diagnosed with polycystic ovarian syndrome. Then I developed insulin resistance. I am now on Janumet to control the insulin resistance. Last year I developed severe chronic anemia and had to get 9 rounds of IV iron infusions. For the last two years I have been going to my endocrinologist every three months because something always goes wrong. I had a bout of severe intestinal distress and kept nothing down for three weeks and celiac disease was ruled out by and colonoscopy. Between April and today I have lost 40 pounds. My latest round of blood work shows that I have diabetes insepidus (sp) which is caused by a malfunctioning pituitary gland. I also have a chronic UTI infection for the last four months, increased white blood count in my urine, chronic fatigue, horrible moods, achy joints and bones, and a general feeling of being confused and aggitated.

    Anyone have any clues as to what I should do next? the endocrinologist ran some kind of blood work panel – -I believe called and ADH panel and I will get it back next week and then he wants to send me for an MRI. It was also shown that my thyroid is now overactive again even though technically I am not supposed to have a thyroid.

    What are other options or other tests I should ask for. The doctors seem so confused with what is going on with me because with regard to the autoimmune diseases it is confusing. The third endocrinologist I have been seeing came highly recommended because he is used as an expert witness related to autoimmune disorderes in court cases.

    Thanks for any help or guidance.

    • ANSWER:
      I am sorry for your condition, and I have seen miracles.

      There is no way I can know what you are going through, but I looked a few things up .

      http://www.doctorzebra.com/prez/g41.htm

      this site is about the health of former president Bush Sr.

      He developed Graves and so did his wife
      the odds of this, dr. Zebra, ar four million to one.

      I remember a long time ago reading about the microwave bombardment of the Blair house and how people who lived there were sick with graves. can’t find a source, though, the Bushes lived there.

      also I found a discussion about graves and radiation:

      http://www.askwaltstollmd.com/archives/graves.html

      there are many different points of view here- a lot of personal insights
      Maybe , if you read through them there may be something else you can try.

  13. QUESTION:
    I sometimes pass out and have convulsions,sometimes have slightly low blood pressure and my sodium level is?
    borderline low.2 epilepsy tests,mri,cat scan,thyroid and ACTH test were ALL normal.Just the ANA(autoimmune disease)test was “high” or positive.Mom has Lupus.Any ideas on what I might have.I’ve been seeing docs for years and continue to go to a neurologist,heart doc and an endo.Just looking for thoughts or opinions.Anyone with simmilar symptoms?What did they end up figuring out?Docs have no idea whats wrong with me
    Tired all the time,since I was 5 years old!So exhausted with no energy all the time!!Dizzy and lightheaded all the time.Nautious almost everyday.Vomit sometimes for no reason.Diahreah a few times a week,sometimes up to 3 times a day.Been hospitalized for severe coldness and shaking.Severe back pain from nowhere

    • ANSWER:
      I would check with a neurologist again. It sounds like a problem with your vagus nerve.

  14. QUESTION:
    CAN YOUR WHITE BLOOD CELL COUNT NOT SHOW SIGNS OF INFECTION?
    AND can herpes on your face look like acne, and not be near your mouth?
    im breaking out so bad! and im back on my acne medication which usually clears it up to like 90%!! i have mountain types of red painfull bumps(that dont pop like mine usually do) in all areas on my dermatologist says normal! and a few blisters types.
    BUT my dr’s and i have been doing all kinds of blood, urine and stool tests to figure out whats wrong w/ me because i have been quite sick W/ a ridiculous amount of symptoms……. my symptoms include(but not limited to): extreme weight loss(20%) over the past 7 months w/ no known reason, memory loss,fatigue,confusion, trouble finding words, constipation,blood clots in stool, extreme amount of mucus in stool, malabsorbtion,constant feeling of needing to move bowels, itchy scalp,dry hair and skin, dry mouth, large amounts of yeast in mouth, swollen tender glands throughout entire body(HARD IMMOBILE SLOW GROWING LYMPH NODES IN GROIN ABOUT 1MONTH NOW -now about 1cm-1in big), circulation changes(pigmentation in skin either very pale or red, varicoses veins pronounced in legs when im doing anything physically demanding,broken blood vessels appearing easily; eyes and nose)cold feet and hands, hot flashes(im 29YRS OLD!), pain(inside of knees, lower back, stiff neck, headaches), hands wrists ankles and feet swelling(bilaterally) w/ tingling sensation and numbness, muscle cramping and spams, few BLISTER TYPE canker sores, hair loss, dry eyes, abdominal swelling, appetite up and down but always feeling full quickly, excessive gas, ocd symptoms, behavior changes, THROAT feels full, itchy wet ears(get clogged alot), cuts on fingers and hands slow to heal, allergy type symptoms out of no-where, skin tag inside anus almost at edge, slight vaginal discharge(not strong odor) and swelling(looks as if the walls of vagina are closing in! swollen and low), bump on cervix(that has been there years but now growing fast and a new one just inside opening-purplish in color. i can see it bc cervix is so low and maybe swollen(2gynecologists examined me and said look normal!)
    IM ON SYNTHROID FOR LOW THYROID,CO LACE FOR CONSTIPATION AND ZANTAC FOR GAS
    I HAVE HASHIMOTO DISEASE(autoimmune low thyroid) I HAD A VERY LARGE TUMOR REMOVED FROM CHEST 15 YRS AGO(attached to my trachea,aorta,heart,esophagus and windpipe. but seems to not have grown back according to x rays
    im thinking i have a number of different problems and that’s whats confusing the dr’s-
    i had clear x chest x rays and only one abnormal ekg out of 3(Dr’s say no concern and no found heart probs) clear ultrasound of liver,heart,gall bladder, etc, all basic blood urine and stool tests plus extra thyroid tests, rheumatoid arthritis,lyme disease, celiac, HIV, gonorrhea, chlamydiae, and parasite tests and more.—— all normal so far! (w/ the exception of a slightly low sugar)
    *** im concerned my white blood cell counts are not showing up on tests accurately bc i must have SOME type of infection! LYMPHOMA, CANCER, HIV(that is not showing on test) BRAIN TUMOR! I DONT KNOW-SYPMTOMS ARE SO ALL OVER THE MAP!
    im stressed from all this worrying prb making my sypmtoms more severe and multiply, but i know something is wrong! SOMEONE ANYONE PLEASE HELP ME im seeing dr tom so hopefully some news(GOOD OR BAD AT THIS POINT IS GOOD TO ME!)

    • ANSWER:
      many of those symptoms lead to HIV, and it is not uncommon to have a negative test result when you are actually HIV positive. get retested.. but overall sounds like you just named everything you could think of.

      -vaginal discharge: normal
      -skin tags: normal
      -sores: possible STD
      - bump on cervix: might actually be the cervix, if you gyno can’t see it, im sure it’s fine
      - etc..

      start thinking about what’s changed recently versus worrying so much about the little things. that’s what confuses doctors, when you talk about 100 different things when really the worst symptom is the cause of everything else

      your thyroid problem is most likely causing your lymph nodes to be swollen, as well as most of the symptoms above

      as for the acne.. it is stress induced.. and you seem to be very stressed.

      i suggest stop taking so much medications, consult more doctors until you’re satisfied, they know what your blood work reveals, not us

  15. QUESTION:
    Is it my thyroid, colitis, or just anxiety?
    In 2006, I was diagnosed with Graves Disease. After nearly 2 years on the meds, the Doc took me off, since I’m supposively supposed to be in remission. However, since my medicine has been reduced, I have been having a whole host of issues. My legs have been hurting, a general achyness from my knees to my ankles. I am extremely nauseous (no, I can’t be pregnant,) with diarrhea daily, sometimes up to 4 times a day. My tailbone is killing me and my abdomen is tender under my belly button. The constant nausea increases my anxiety. I’ve been to the Doctor several times over the last couple of weeks. I’ve been given ‘Prontonix,” an acid reducer, put on Celebrex, and had my BuSpar (anti-anxiety meds) increased. The Chriopractor says my coccyx is out of alignment and the Orthopedic thinks my legs hurt due to over usuage. I am on a few different tennis leagues, and I play about 3-4xs a week. He has scheduled me for an MRI to check for cysts and tumors on the coccyx, but thinks the likelyhood of finding any are slim. Primary care Doctor ordered a battery of blood test, all which came back normal, except for that my ANA (test for autoimmune disease) came back positive, but my Sed Rate was normal but on the high side of normal (12 with 0-15 being normal.) My TSH was back up from 2.5 in Aug to 0.67 last week, but my T-4 was normal. They are going to do more lab work to do an ANA reflex titer test which will break down the auto immune test to find out what it is that I have, but it could just be the thyroid showing up. Yesterday, I had an ultrasound on my abdomen, but haven’t received the results yet. I just feel as if I’m falling apart, and I’m only 30 years old! I’m wondering if this is possibly my hyperthyroidism rearing its ugly head again, some type of colitis, or perhaps after 6 years of being on the same antianxiety meds, they just aren’t doing the job anymore. Help!

    • ANSWER:
      I too have Graves Disease. The best way to find out if it is that again is to go for a blood test. Talk to your doctor about it. Stress is also a likely factor. Symptoms of stress are widely varied and affect different people in different ways. But please have your thyroid checked. Good Luck!

  16. QUESTION:
    Could i have an autoimmune disease?
    I was diagnosed as suffering from hypothyroidism (extremely underactive thyroid) in march and im still going through the process of getting my medication balance right, i believe its just about at the right level now but blood tests later this month will confirm hopefully. The docs think it was triggered as a result of my pregnancy (had my baby Nov 09) as the times tally up for symptoms etc. Lately though ive been catching many infections, especially in the last week ive had a urine infection, severe conjuctivitis and now i really think ive got a throat infection too, as well as a cold, my eyesight has deteriorated too which has led to me needing glasses as i have an astigmatism in one eye (which i know may not be connected) im just getting worried that there may be some underlying reason for all this, i know that an autoimmune disorder/disease can cause hypothyroidism, and the doctors told me my thyroid levels were at rock bottom, can anyone in medical career tell me if this could be the case please??

    • ANSWER:
      Hypothyroid patients show up with vitamin B12, iron and vitamin D deficiency. Vitamin D is essential as this steroid hormone activates the immune system. Child­birth can be a hor­mo­nal trig­ger for Hashimoto’s Disease and autoimmune pernicious anaemia is linked to this condition..unable to absorb vitamin B12 in the digestive tract. Vitamin B12 is essential to protect the myelin sheath (covering around the nerves) from damage. Blindness, double vision and blurred vision is a few of the many symptoms of vitamin B12 deficiency.

      I personally have autoimmune pernicious anaemia and i take under the tongue B12 spray daily. You haven’t mentioned any other symptoms so it may not be from this but it cannot hurt to check. Autoimmune pernicious anaemia is confirmed with a positive instrinsic factor and/or parietal cell antibody test. The first link is the recommended blood tests for anyone suffering hypothyroidism and what results to look for.

      Lab work:

      http://www.stopthethyroidmadness.com/lab-values/

      T4 meds don’t work:

      http://www.stopthethyroidmadness.com/t4-only-meds-dont-work/

      Hasimoto’s disease:

      http://autoimmune.pathology.jhmi.edu/diseases.cfm?systemID=3&diseaseID=22

      Vitamin B12 deficiency symptoms:

      http://b12d.net/book/export/html/29

  17. QUESTION:
    My 8 year old son has high Cholesterol (240), high LDL, but normal tryglicerides.?
    Doc has refered us to an Endocrinologist. I am not finding a whole lot of helpful info online about this. Everything I’m finding says “High Cholesterol, high LDL, and High Tryglicerides lead to…yada, yada, yada, and then it goes on to say that basically the child should lose weight!! My child is 8 years old, and 69 pounds!! The only thing I’ve found that kept popping up is Adrenal Gland growths and other problems w/the adrenal glands. We putt him on fish oil when we got the diagnosis and 2 months after we had his Cholesterol retested and it was HIGHER! Now it’s even higher and he DOES NOT eat fried foods. He excersises and eats right, I don’t understand!! It is really scarring me now and I don’t know what to do. The doctors are always quick to say “It may be this, or it may be nothing” and then we have to WAIT forever it seems.

    He tested negative for diabetes and Thyroid disease. I have autoimmune Thyroid disease (Fun Fun!) and my family has a history of Gland problems.

    Just so you know a little of his symptoms, 2 years ago he went from a “Normal” child to I knew something was wrong but doc’s won’t test based on “My child just isn’t acting right, I know something’s wrong”. He started getting migranes (Had a CT or 2 not tumors), Moody as all get out, ADHD got worse (WAY worse), started getting into fights at school, went from an honor roll student to failing in two classes, 3 times on routine physicals they have found protein in his urine but after the 24 hour urine they say it’s fine, rashes/hives come and go, nervousness, he can go from hyper to tired/sleepy in no time at all, he sleeps well most nights but others not at all, hearing difficulties (but his hearing test is fine), blurred vision, and I’m sure I’m forgetting something but it’s been a rollercoaster.

    Someone please give me some lead to go on here, I’ve researched the adrenal glands and he doesn’t have those symptoms so I don’t understand?? Someone please help!!

    • ANSWER:
      Have they done a pituitary MRI (with and without contrast)? CTs don’t always pick up the pituitary very well. What are his cortisol test results? Those would be off too if he has adrenal problems. They may have ruled out pituitary problems based on the normal thyroid result but be aware that if he too has an autoimmune thyroid problem, if the pituitary is making it go down and autoimmune up (or is it the other way, cant remember) it may look normal. This happened to me…I have Hashimotos and a severe pituitary disorder and my thyroid results showed normal. The Drs ruled out pituitary disorder and delayed treatment until I found a good endo who figured it out. Some of his symptoms sound pituitary…brain fog, fatigue, etc. But rash doesn’t fit. Maybe some other autoimmune disorder.

  18. QUESTION:
    What do you think of my thyroid hormone results?
    After losing quite a lot of hair for 8 months I finally pushed for some blood tests suspecting a thyroid problem and discovered that my TSH was 4.2 U/mL (0.3 – 3.0 U/mL) and my T4 level was 12 pmol/L (10 – 23 pmol/L). My doctor didn’t seem very sure as to what course of action to follow as he described it as only slightly under active and decided that I should come back for a second blood test.

    I returned today for blood test number two and my doctor prescribed me 25 micrograms of Eltroxin and depending on the results of the blood test, I will have to take it.

    I was hoping to possibly get a second opinion from someone who might know a little more about it than me.

    I’ll be 19 next month and I’m moving away to University next week so I’m wondering how it might have an effect on my day to day life.
    I’m a healthy weight, but I have found it slightly easier to gain a pound or two in recent months and a lot more difficult to lose it, I find myself being exhausted during the day for a few hours and then completely fine a while after (without having consumed food) and I’ve noticed my memory and concentration has gotten a little worse too (simple words for day to day items seem to just vanish from my mind sometimes). However I don’t have any signs of goitre.

    I was also wondering if anyone else had experienced a lot of hairloss at the same level of under activity I have?

    I’ve considered that I may have Hashimoto’s but apparently here in Europe people are more likely to have Ord’s Thyroiditis, which is similiar to Hashimoto’s but instead of an enlarged thyroid, the thyroid shrinks. There isn’t very much information online about it though.
    (I want to get a thyroid antibody test to find out if I do have an autoimmune disease but I’m moving in a few days and I won’t be able to see my doctor for another blood test until late October.)
    I live in Ireland :)
    With that measurement for T4 I believe I’m 0.9
    My hair loss shows no signs of stopping and has gotten more severe in recent months, I’m afraid that If I postpone getting treatment, I’ll end up with very little hair, It’s already extremely thin.

    • ANSWER:
      You need testing for thyroid ANTIBODIES as well as TSH. TSH ‘norm’ should be .3 – 3 (w/ most feeling best at < 2) but would not matter if ANTIBODIES are present. Indicative of Hashimoto’s Autoimmune Thyroiditis…main cause of HypOthyroid & is worse (...OR Graves Disease - HypERthyroid).

      With Hashi's (main cause of hypOthyroidsim) the thyroid often is NOT enlarged...It is that the body is attacking the thyroid.

      WARNING: Doctors seem not to want to find/treat thyroid disease. You may have to go to more than one doctor before you get the right tests, interpretation, and treatment. Best wishes.

      Ck these:

      http://thyroid.about.com/bio/Mary-Shomon-350.htm

      http://www.stopthethyroidmadness.com/

      http://www.thyrophoenix.com/index.html

      http://thyroid.about.com/cs/newsinfo/l/blguidelines.htm

      God bless

  19. QUESTION:
    Do I have a bacterial infection? Whats wrong with me?
    Im 19 and here are My symptoms; severe stomach pain mostly in my lower abdomen, nausea, feeling really full, bloating, weight loss, fatigue, loss of apetite,sometimes a weird burning feeling in my tummy that could be acid but idk and i ALWAYS belch 24/7 all day every day. I think I may have gastritis cause by a bacterial infection called H pylori. I have the symptoms but im not really sure. I have been back and forward to the doctor over 4 years and had many test done including IBS test, Celiac disease test, thyroid diesase test, a colonoscopy and biopsy and several blood test that have all came back negitive despitean abnormality in my autoimmune blood test and I am anemic. So do you think I have gastritis? What are some test that can confirm and what is the treatment? Serious answers only please. I am so tired of feeling sick and not knowing why or what to do about it. I just want my normal life back. Thanks :-)

    • ANSWER:

  20. QUESTION:
    For those with Crohn’s disease?
    In order to have Crohn’s must you have blood in your stool? I was on a site yesterday that said that you can also have red burning eyes during an attack and arthritis in joints which I get along with horrible abdominal and intestinal pain. I do not deal with D, nor have I ever experienced blood (I was diagnosed with IBS but they did no tests or colonoscopy…nothing). Is that one of the trademarks of the disease, or can you have that without experiencing it. If so I’ll go for more thorough testing. I have Hashimotos Thyroiditis which is an autoimmune disease of the thyroid and I also know that having an autoimmune disease raises your risk for developing another autoimmune disease.

    I also wonder if blood work would show the possibility of having it.

    Thanks.

    • ANSWER:
      There is no single blood test that shows you have Crohn’s disease. But there are many markers that indicate a possibility of having Crohn’s with other signs and symptoms. Having Hashimoto’s disease would probably increases the chances of having other autoimmune diseases but it not necessarily Crohn’s disease.

      Also, you don’t have to have blood in stool with Crohn’s. Blood in stool is common with Crohn’s but more common in ulcerative colitis.

      I am a pharmacist and Crohn’s patient in full remission. If you need to ask more questions, go to this Crohn’s forum:

      http://www.journey-with-crohns-disease.com/health-questions.html

      All the best to you

  21. QUESTION:
    What autoimmune disease could I have?
    I recently went to the doctor and they ran many tests. However, these tests wont be in for another week and I really would like to look online about some of the diseases or disorders I may/may not have. I told my doctor my symptoms, which included:

    -Back Pain
    -Dry Mouth
    -Skin rash on hips, face, stomach, butt.
    -Weight loss
    -Fever
    -Cold/Hot when other people are fine.
    -More prone to infections
    -Constipation
    -Trouble falling asleep/staying asleep
    -Difficulty fighting infections

    I also have cysts on various organs as well as an underactive thyroid.
    Any idea?
    I also bruise more easily than before.
    And forgetfulness, trouble concentrating, etc.

    • ANSWER:

  22. QUESTION:
    Does Insulin Resistance or too much insulin in the bloodstream make you fat?
    I’m going to be doing some blood tests to see why I’m thirsty and peeing all the time. In the meantime, the doctor told me to read up on Diabetes Insipidus, Diabetes Mellitus and even Psychogenic Polydipsia.

    I’m 46 and have always been very active. I lift weights and run about 25 – 30 miles per week. I’ve been experiencing CRAZY thirst since July and I’ve also noticed that I’ve been getting fat around the middle. My diet hasn’t changed (if anything, sometimes I don’t think I eat enough). No one in my family has diabetes, although I have an autoimmune thyroid disease.

    I suppose that the belly fat can also be attributed to middle-age spread, but I’m not overweight. I don’t know yet if I have some type of diabetes, but I’m wondering if the belly fat, in addition to the increased thirst and the frequent peeing points to a diabetes diagnosis?

    PS It didn’t occur to me to mention the belly fat to my new doctor when I saw him a week ago. I guess I’ll mention it when I see him for the blood test results. I’d sure appreaciate some comments from anyone who’s experienced something similar.

    Thanks!!
    I should also add that I’ve been having leg pain/muscle cramps which I also didn’t mention to the doctor because I just assumed they were musculoskeletal related (maybe running related).

    Sorry to be so long-winded.

    • ANSWER:
      For info on Diabetes go to Blood Sugar 101. http://www.phlaunt.com/diabetes/index.php

      Insulin resistance causes weight gain.Weight gain, fat storage, difficulty losing weight – for most people, excess weight is from high fat storage; the fat in IR is generally stored in and around abdominal organs in both males and females. It is currently suspected that hormone production in that fat are a precipitating cause of insulin resistance

      Primary polydipsia or psychogenic polydipsia is a special form of polydipsia. It is usually associated with a patient’s increasing fluid intake due to the sensation of having a dry mouth.

      When the term “psychogenic polydipsia” is used, it implies that the condition is caused by mental disorders. However, the dry mouth is often due to phenothiazine medications used in some mental disorders, rather than the underlying condition.Psychogenic polydipsia is a type of polydypsia described in patients with mental illnesses and/or the developmentally disabled. It is present in a subset of people with schizophrenia. These patients, most often with a long history of illness, exhibit enlarged ventricles and shrunken cortex on MRI, making the physiological mechanism difficult to isolate from the psychogenic. It is a serious disorder and often leads to institutionalization as it can be very difficult to manage outside the inpatient setting. It should be taken very seriously – it can be life threatening as serum sodium is diluted to an extent that seizures and cardiac arrest can occur. Patients have been known to seek fluids from any source possible.

      Leg muscle cramps, particularly at night, is a classic sign of undiagnosed diabetes.

      You could also buy a Glucometer at walmart for and test yourself for Diabetes.

      Diabetes Insipidus is divided into four types, each of which has a different cause and must be treated differently. The most common type of DI is caused by a lack of vasopressin, a hormone that normally acts upon the kidney to reduce urine output by increasing the concentration of the urine.

      Take care

      Tin

  23. QUESTION:
    i have a question for anyone who could answer a question about throats problems.?
    I have a goiter in the middle of my throat, so about 2 months ago I got it. I went to the doctors and they did an ultrasound got the size of it, and then made an appointment with a throat doctor. They did two tests one for thyroid disease, and the other for autoimmune disease. I didn’t have either and they basically just said we did those tests and now that’s it. So I am living with it, it is not fun it really affects my throat. I feel a lot of pressure on my throat, every time I swallow, eat, and drink it is so uncomfortable and It is starting to hurt. What I want to know is should I complain and try and find a different doctor. I just don’t see how they cant do something.

    • ANSWER:

  24. QUESTION:
    Hi just sharing my thyroid problems to see if someone had same experience and outcome.?
    I had a blood test about 6 months ago which showed slighlty elevated T4, and normal TSH, pathologist suggested repeating blood test 4 – 6 weeks later.

    Second blood test showed slightly high T4 almost insignificant 19.2 pmol/L – Range (10.0 – 19.0)
    And Low TSH: 0.16 mIU/L – Range (0.50 – 4.00). This blood test was done in April this year. (2011)

    However not many symptoms apart from not sleeping well, and shaky hands (Have had shaky hands for years though, so not sure if its because of this).
    Feeling unusually hot and moody. Doctor did not prescribe any meds, didnt think i needed them. (I didnt either, sysmptoms were not too bad). He did give me a form to get blood test done around end of may. (symptoms still the same in may, not too bad, so didnt do blood test)

    Went to see other doctor, around early August, because my symptoms were getting a little worse. (By the way both docs are not endocrinologists). I told him the story so far, and he thought I should take meds for a week and see how i felt. He prescribed Neo-Mercazole – 5mg twice daily. ( I didn’t buy them, so still taking no meds at this time) He asked me to show him my blood test request i got from the first doctor, and he added a test to check for thyroid antibodies.

    Still I thought I would wait and see if everything went back to normal, so left it till the 17th of this month (Oct – 2011) Yesterday to do third blood test. My symptoms have progressively got worsew.
    Feeling hot almost every day, trouble concentrating sometimes, sleep is crap, more moody than before, still shaky hands (not very bad though), eys sometimes feel irritated and sting a little (havnt noticed any swelling, just irritated eyes), just an overall feeling of disconfort)

    Got my results today:
    TSH normal – 0.66 Range (0.50-4.00) Previous test in april was 0.16
    Doc didnt check for T4, or T3 levels this time though???? Dnt know why??? Would ve thought he would want tpo check them again to compare.

    Antibodies:

    Anti-Thyroid Peroxidase: Little high – 88 kIU/L – Range (<60)
    Anti-Thyroidglobulin: Normal - 37 kIU/L - Range (<60)

    Pathologist said these are markers for autoimmune diseases like Hashimotos and Graves disease. However they are also detected in healthy people.

    So my symptoms are getting a little worse, tests are very inconclusive!! and no T4 or T3 levels tested this time.

    Should I start on the neo-mercazole? I bought them today before i got my results because i was sure that my hormone levels would be high, but doc only tested for TSH.

    Very long story I know, but thought that i need to put the whole story to give a better picture of what has been happening so far.

    Hoipe someone out there has had a similar thing happen to them, any suggestions stories would be appreciated.

    Thanks in advanced.

    • ANSWER:
      Find a doctor who can say ‘you have Hashimotos’. TSH ‘norm’ should be .3 – 3 (w/ most feeling best at < 2) but, for diagnosis, would not matter if ANTIBODIES are present. Indicative of Hashimoto’s Autoimmune Thyroiditis (cycles between hyper & hypo at start)…main cause of HypOthyroid & is worse (...OR Graves Disease - HypERthyroid).

      WARNING: Doctors seem not to want to find/treat thyroid disease. You may have to go to more than one doctor before you get the right tests, interpretation, and treatment. Best wishes.

      Ck these:

      http://thyroid.about.com/bio/Mary-Shomon-350.htm

      http://www.stopthethyroidmadness.com/

      http://www.thyrophoenix.com/index.html

      http://thyroid.about.com/cs/newsinfo/l/blguidelines.htm

      God bless

  25. QUESTION:
    Is it safe for a pregnant woman to drink infant formula?
    I would think not….

    Aluminum

    <5-45 ug/l in breast milk
    557-2,346 ug/l in soy formula
    Aluminum interferes with cellular metabolic processes and information transfer from DNA

    Silicon

    55.45ng/ml in milk of mothers with silicone implants
    51.05ng/ml in milk of mothers without implants
    746-13,811 ng/ml in 26 brands of formula tested for silicon
    The effect of large amounts of silicon on an infant is unknown

    Cadmium

    Cadmium is a highly toxic metal that can cause kidney damage in high amounts. Neurotoxic effects such
    as psychomotor disturbances, behavioral and cognitive disorders have been demonstrated in animal models
    with low-dose exposure. Cadmium levels can be 6 times higher in soy formula compared to milk- based
    formula. Cadmium is also found in cereals with the exposure of dietary cadmium from weaning diets up to
    12 times higher in children fed infant formula compared to breast milk.
    Genetically engineered corn and soy
    Detected in Alsoy (Carnation/Nestle), Similac Neocare (Ross Labs), Isomil (Ross Labs), Prosobee (Mead
    Johnson)
    Transgenic ingredients pose the risk of introducing novel toxins, new allergens, and increased antibiotic
    resistance to infants. The FDA does not require labeling of genetically engineered foods, so parents will
    remain unaware that their baby is consuming transgenic ingredients

    MSG (processed free glutamic acid and processed free aspartic acid)

    These are known neurotoxins found in a number of infant formulas. Because the blood brain barrier is not
    fully developed in infants, these neurotoxins are more accessible to the infant brain than the adult brain.
    The highest levels of these neurotoxins were found in hypoallergenic formulas. Because no studies have
    been done on the long term outcomes of infants fed on hypoallergenic formulas it is unknown if they
    will exhibit more learning disabilities at school age, and/or more endocrine disorders such as obesity, and
    reproductive disorders, later in life.

    Phytoestrogens

    Phytoestrogens are endocrine disruptors found in soy formulas. Infants fed soy formula can have circulating
    phytoestrogen concentrations that are 13,000-22,000 times higher than normal levels in early life. These
    bioactive compounds can create steroid hormone imbalance, compete with enzymes that metabolize steroids,
    drugs and xenobiotics, and can influence gonadal function. Genistein can be carcinogenic if exposure
    occurs during critical periods of differentiation. Soy formula has been linked to premature thelarche (breast
    development in infants and girls under eight years of age). Phytoestrogens (isoflavones) also act on the
    thyroid gland. They are well known inducers of goiter and anti-thyroid agents. They act against the thyroid
    by inhibition of thyroid peroxidase. Children with autoimmune thyroid disease were three times more likely
    to have been fed soy formula in infancy.
    2

    Phthalates and Bisphenol-A

    These are endocrine disrupting industrial chemicals. Phthalates are used as plasticisers and are testicular
    toxins as well as estradiol imitators.
    Bisphenol-A is used in the production of polycarbonate plastics and has been found in plastic baby bottles.
    It can leach from the container and has been known to be estrogenic since 1938. Bisphenol-A resins are
    used as lacquers to coat metal products such as food cans. With a high affinity for fatty products, it has
    been shown to leach into the content of cans during the autoclaving process, including cans of milk based
    infant formula.
    Contaminants in water used to reconstitute concentrated and powdered formula

    Lead

    Lead in water used to reconstitute formula can cause elevations in blood lead levels if used from the hot
    water tap or boiled. Boiling concentrates lead. There is a 6 point IQ drop for every 10ug increase in blood
    lead levels.

    Nitrates

    Infants fed formula reconstituted with nitrate-contaminated water are at risk for potentially fatal methemoglobinemia.
    Nitrates are converted to nitrites by the baby resulting in hemoglobin being converted to
    methemoglobin that cannot bind molecular oxygen. This risk increases if babies under six months are also
    fed baby food with high concentrations of nitrates such as green beans and bananas.

    Atrazine

    Atrazine is a weed killer that causes mammary and uterine cancer in rats. In the cities and towns with
    the worst tap water contamination, formula-fed babies who consume reconstituted formula would receive a
    lifetime dose of this chemical in the first four months of their lives.

    Bacteria

    Significant bacterial contamination can occur during home preparation of powdered infant formula.
    Reconstituted formula stored in the refrigerator shows increasing bacterial counts over time

    • ANSWER:
      makes me glad im a breastfeeder….but then again i was formula fed….i wonder how that affects my milk now…?

  26. QUESTION:
    What is wrong with me? Is it lupus?
    So I have been dealing with being seriously sick for over two years now. I was diagnosed with an autoimmune thyroid disease and celiac disease. I have been on a gluten free diet for about three months now and thyroid medication for about 1 year but nothing has changed, if anything it has gotten worse. I have a huge feeling that it is lupus but I was tested for it and it was negative. Could it be a false negative or do I have something else? These are my symptoms:
    Fever
    Extreme Fatigue (I cant even go to school anymore I’m so tired)
    Weakness
    Bad Muscle Aches
    Joint Pain
    Lack of appetite
    Depression
    Sun Sensitivity
    Heart pains when i breathe deep
    Hair loss
    Mild case of anemia
    Anxiety
    Chills
    Trouble Breathing
    Headache
    Dizziness
    Stomach pain
    Trouble focusing
    Memory problems

    What should I do? I need to figure this out soon cause i cant keep living like this.
    Its not thyroid disease because my levels are in the normal range. Also I’ve been tested for mono more than once and it has come back negative. Its also not
    MS because I was tested for that and it was negative, I also don’t have the same symptoms as MS

    • ANSWER:
      wow..
      It sounds like you have… everything.

      Ask Dr.House.

  27. QUESTION:
    autoimmune diseases?
    was diagnosed at age 31 with Graves Disease. The symptoms came on suddenly and severely. I was put on the medications used for Graves Disease and also the symptoms the Graves Disease was causing such as high blood pressure. Then I started getting severe hives to the point of having to be rushed to the ER because they were in my throat.

    Three endocrinologists later it was determined by the majority that I was allergic to the Graves Disease medication and I should get radioactive iodine to destroy my thyroid. I was told that my increased heart rate, increased blood pressure etc. was life-threatening so I consented to the RAI.

    I am now 35 years old and the journy to finding out exactly what is wrong with me continues. My thyroid eventually bottomed out after receiving the RAI, so I had all of those symptoms. I am currently on Synthroid 175 MCG. Then I was diagnosed with polycystic ovarian syndrome. Then I developed insulin resistance. I am now on Janumet to control the insulin resistance. Last year I developed severe chronic anemia and had to get 9 rounds of IV iron infusions. For the last two years I have been going to my endocrinologist every three months because something always goes wrong. I had a bout of severe intestinal distress and kept nothing down for three weeks and celiac disease was ruled out by and colonoscopy. Between April and today I have lost 40 pounds. My latest round of blood work shows that I have diabetes insepidus (sp) which is caused by a malfunctioning pituitary gland. I also have a chronic UTI infection for the last four months, increased white blood count in my urine, chronic fatigue, horrible moods, achy joints and bones, and a general feeling of being confused and aggitated.

    Anyone have any clues as to what I should do next? the endocrinologist ran some kind of blood work panel – -I believe called and ADH panel and I will get it back next week and then he wants to send me for an MRI. It was also shown that my thyroid is now overactive again even though technically I am not supposed to have a thyroid.

    What are other options or other tests I should ask for. The doctors seem so confused with what is going on with me because with regard to the autoimmune diseases it is confusing. The third endocrinologist I have been seeing came highly recommended because he is used as an expert witness related to autoimmune disorderes in court cases.

    Thanks for any help or guidance.

    • ANSWER:
      I urge you to go to the nearest University Hospital (generally near a Medical School) for help. You now have several systems involved & you will go broke in bod & in dollars before long.

      You’ll get the latest, best treatment for all your difficult problems there. They’ll help you find ways to meet the costs. You can also consider treatment overseas (India is very good, while reasonable in cost [even including food, flights, lodging + they speak English)! Be prepared to spend a lot of time & have a lot of patience; you already must be doing that anyhow… Honestly, just do it! Good luck! :)

  28. QUESTION:
    How to find the right thyroid doctor for Hashimotos?
    I have been diagnosed with Hashimotos Thyroiditis via bloodtests and my symptoms that have appeared (both hyperthyroid and hypothyroid symptoms). I am currently on hormone replacement, which doesn’t make sense to me since I have an autoimmune disease. Just because I am on hormone replacement doesn’t mean my immune system isn’t attacking my thyroid, does it? I have a ton of questions that my endocrinologist (who I see only 8 months) is not answering very well. I am only 16 and my mom isn’t giving me much help on this. I want to see a new endocrinologist because I am on 75 MCG Synthroid and when I am on the medicine I feel horrible, it gives me severe headaches and I feel nauseated and too hot. I last visited her in March 2011, complained of my headaches, nausea, hotness, motion sickness, etc and she switched my medicine to Synthroid (I was on Levothyroxine before). I also had another blood test and my results came back normal. I am tired of being sick and tired. I am tired of calling the hospital and they are too busy. I am not getting my questions answered. I feel horrible on this medicine. I don’t care if my levels are “normal”. I want them to find out what the real problem is!
    Yeah.. like eating the right FOODS is going to help my immune system from killing my thyroid… no thanks.

    • ANSWER:
      Hashimoto’s IS the REAL PROBLEM! There is no cure & you HAVE TO stay on the thyroid replacement hormones meds for life. The sooner you realize this, the better. You may have had your disease found before the many terrible symptoms had ever started … good for you! Those symptoms are from the disease rather than the treatment. (Most people do better on the brand name Synthroid). Results coming back ‘normal’ indicates that the treatment is working… DO NOT stop it. It may go ‘abnormal’ again before getting ‘normal’ and staying there. It takes time to get better.

      I totally understand ‘tired of being sick and tired’…you are not alone. This has become like an epidemic in this country & MANY people are not fortunate enough to have found a real doctor & gotten diagnosed & started on treatment.

      Here is some good info to help you understand your disease better:
      TSH ‘norm’ should be .3 – 3 (w/ most feeling best at < 2) but would not matter if ANTIBODIES are present. Indicative of Hashimoto’s Autoimmune Thyroiditis…main cause of HypOthyroid & is worse (...OR Graves Disease - HypERthyroid).

      Ck these:

      http://thyroid.about.com/bio/Mary-Shomon-350.htm

      http://www.stopthethyroidmadness.com/

      http://www.thyrophoenix.com/index.html

      God bless you. I pray that you will soon feel better.

  29. QUESTION:
    Looking for A Diagnosis … Does anyone have similar symptoms?
    Here is a list of symptoms I have. All symptoms have become present within the last 3 years, except for asthma. I have had asthma my whole life. I am looking for answers because any research I have done and doctors I have seen have not been able to diagnosis me with the underlying cause.

    -asthma
    -MRSA (several outbreaks, last one was 1 1/2 years ago)
    -Severe skin rash on hands and feet (dermatologist refers to as
    dermatitis)
    -eczema
    -Alopecia
    -Hives
    -Urinary Tract Infections
    -tingling in hands and feet
    -moody

    I just got a call from my doctor, informing me that the tests I took most recently all came back negative. These tests included thyroid, autoimmune, anemia, and celiac disease.

    All symptoms started to appear about 3 years ago when I had pneumonia. At the same time, I had my first outbreak of MRSA (which appeared in 3 separate places at once) and this is when my hair started to fall out (Alopecia).

    I am becoming more and more upset about my health problems because I cannot find any answers. I do not know what is the cause for all these issues. I am lost with where to turn next, so I am asking this to the public to see if anyone else is in a similar situation or knows what I have.

    I absolutely appreciate any answers or stories.

    Thank You!

    • ANSWER:
      Your Answer:
      Possibly adrenal insufficiency, iodine deficiency, and maybe thyroid.
      Take your temperature several times a day and if it varies quite a bit, that’s a sign of adrenal issues. Also, shine a light across your eyes in a dark room. If the pupils do not stay constricted, pulse, and/or ‘wobble’, that is another sign of adrenal issues. Please see:

      http://www.stopthethyroidmadness.com/adr…

      http://www.stopthethyroidmadness.com/ald…

      If your normal body temperature is below 98.2 degrees F, you may also have a thyroid issue. Tests for thyroid “should be” the
      Free T3 and Free T4, and they should be near the tops of their ranges with the Free T3 slightly higher thn the Free T4. If you only had a TSH run, it should ideally be “almost zero” or below 1. Please see:

      http://www.stopthethyroidmadness.com

      Also: http://www.stopthethyroidmadness.com/fer…

      Iodine info:

      http://www.iodine4health.com

      http://www.breastcancerchoices.org/iodin…

      http://health.groups.yahoo.com/group/iod… <---this group has a ton of info in the files section.

      I certainly hope this information helps somewhat.

  30. QUESTION:
    Sinus or gland right below bottom gums?
    I’m sick and my teeth hurt really bad. The glands on my throat and chin are swollen. My top teeth hurt, so I found some pics of sinuses and found that my maxillary sinuses are swollen and creating pressure on my gums. Are their any sinuses or glands directly below my botton teeth. My bottom teeth mostly hurt on the right side, and my glands on my chin on the right side are not nearly as swollen but hurt real bad when you touch it. On the left side on my chin, the gland is swollen, but before it was larger for like 2-4 weeks.
    Do I have a gland beneath my bottom teeth. If it helps, I went to the doctor the day before yesterday and was negative for strep throat (My throat hurts like hell, the doc said it was disgusting and I has “puss pockets” and inflammation) I was tested for mono and came back negative too. So I either have a flu or another virus. Please answer my question please, if you could help me with what I have or if I have glands there it would help. ps: Me and my sister may have a thyroid autoimmune disease, or lupus.

    • ANSWER:
      hmm well you do have multiple salivary glands in your mouth, including one located under your tongue – is that where you feel the pain?
      i recently learnt in one of my classes that there is a virus, the mumps virus which targets the parotid and salivary glands however you were likely immunized against that as a child.
      it could possibly just be the flu

  31. QUESTION:
    If it’s not hashimoto’s, what is it?
    For two years I have suffered with hypothyroid symptoms and eighteen months ago I developed a lump on my thyroid.

    Hashimoto’s thyroiditis runs in my family, my Mum was diagnosed at 32 and both my aunt and my Nana have it. I have TPO antibodies but my thyroid function tests have always been within reference range, therefore my GP says I don’t have hashimoto’s thyroiditis, an underactive thyroid or an autoimmune disease and I don’t need to be treated with thyroxine.

    My symptoms include; extreme tiredness, always very cold, dry skin, weight gain, hair loss, swollen ankles, puffy face, breathlessness, achey muscles, joint pain, tingly/numbness in fingers and toes, heavy periods, irritability, forgetfulness and weak/breaking nails.

    If it isn’t hashimoto’s, what could be wrong with me? I feel like I’m about seventy but I’m 33. I used to be very fit and active, now I struggle to climb the stairs.

    • ANSWER:
      What you just described is hypothyroidism. Here are some of the symptoms:
      Less stamina than others
      Less energy than others
      Long recovery period after any activity
      Inability to hold children for very long
      Arms feeling like dead weights after activity
      Chronic Low Grade Depression
      Suicidal Thoughts
      Often feeling cold
      Cold hands and feet
      High cholesterol
      Bizarre and Debilitating reaction to exercise
      Hard stools
      Constipation
      No eyebrows or thinning outer eyebrows
      Dry Hair
      Hair Loss
      Dry cracking skin
      Nodding off easily
      Requires naps in the afternoon
      Inability to concentrate or read long periods of time
      Forgetfulness
      Foggy thinking
      Inability to lose weight
      Always gaining weight
      Inability to function in a relationship with anyone
      NO sex drive
      Moody periods
      PMS
      Excruciating pain during period
      Nausea
      Swelling/edema/puffiness
      Aching bones/muscles
      Osteoporosis
      Bumps on legs
      Acne on face and in hair
      Breakout on chest and arms
      Hives
      Exhaustion in every dimension–physical, mental, spiritual, emotional
      Inability to work full-time
      Inability to stand on feet for long periods
      Complete lack of motivation
      Slowing to a snail’s pace when walking up slight grade
      Extremely crabby, irritable, intolerant of others
      Handwriting nearly illegible
      Internal itching of ears
      Broken/peeling fingernails
      Dry skin or snake skin
      Major anxiety/worry
      Ringing in ears
      Lactose Intolerance
      Inability to eat in the mornings
      No hair growth, breaks faster than it grows
      Joint pain
      Carpal tunnel symptoms
      No Appetite
      Fluid retention to the point of Congestive Heart Failure
      Swollen legs that prevented walking
      Blood Pressure problems
      Varicose Veins
      Dizziness from fluid on the inner ear
      Low body temperature
      Raised temperature
      Tightness in throat; sore throat
      Swollen lymph glands
      Allergies (which can also be a result of low cortisol–common with hypothyroid patients)
      sore feet (plantar fascitis); painful soles of feet
      now how do I put this one politely….a cold bum, butt, derriere, fanny, gluteus maximus, haunches, hindquarters, posterior, rear, and/or cheeks. Yup, really exists.

      By the way, my own experinence is that I was also in range whenever I was tested. However, I would go from hypo to hyperthyroid. It took my surgeon to finally diagnose me with Hashimoto’s over my Endo. I ended up have a total thyroidectomy due to a multi-nodule goiter caused by Hashi’s plus an iodine deficiency. I’m going to include a great web site for you to check out on all of this.

  32. QUESTION:
    What connections are there between hypothyroidism and sinus problems?
    My son has been diagnosed with HSP and, as a result, kidney disease. It is believed that some autoimmune disorder is the cause. He takes prednisone and still suffers illness from coughing and sinus congestion. I have hypothyroidism and was wondering if this might be the cause for his problems as well. His thyroid tests came back on the low side of normal range which mine did as well. They treated me anyway. Please help.
    Please note that I do not feel that my hypothyroidism is like a virus attacking his body. I want to know if he might have hypothyroidism. I know that my condition is not contagious.

    • ANSWER:
      I don’t think that you having hypothyroidism is the cause for your son’s Henoch-Schloin Purpura. True, both hypothyroidism and HSP have an autoimmune cause, but I don’t think that your hypothyroidism is causing your son’s sinus problems directly. You can ask your doctor to provide you with more literature and maybe do some searches yourself. Hope this helps.

  33. QUESTION:
    autoimmune questions (regarding my health)?
    I was diagnosed at age 31 with Graves Disease. The symptoms came on suddenly and severely. I was put on the medications used for Graves Disease and also the symptoms the Graves Disease was causing such as high blood pressure. Then I started getting severe hives to the point of having to be rushed to the ER because they were in my throat.

    Three endocrinologists later it was determined by the majority that I was allergic to the Graves Disease medication and I should get radioactive iodine to destroy my thyroid. I was told that my increased heart rate, increased blood pressure etc. was life-threatening so I consented to the RAI.

    I am now 35 years old and the journy to finding out exactly what is wrong with me continues. My thyroid eventually bottomed out after receiving the RAI, so I had all of those symptoms. I am currently on Synthroid 175 MCG. Then I was diagnosed with polycystic ovarian syndrome. Then I developed insulin resistance. I am now on Janumet to control the insulin resistance. Last year I developed severe chronic anemia and had to get 9 rounds of IV iron infusions. For the last two years I have been going to my endocrinologist every three months because something always goes wrong. I had a bout of severe intestinal distress and kept nothing down for three weeks and celiac disease was ruled out by and colonoscopy. Between April and today I have lost 40 pounds. My latest round of blood work shows that I have diabetes insepidus (sp) which is caused by a malfunctioning pituitary gland. I also have a chronic UTI infection for the last four months, increased white blood count in my urine, chronic fatigue, horrible moods, achy joints and bones, and a general feeling of being confused and aggitated.

    Anyone have any clues as to what I should do next? the endocrinologist ran some kind of blood work panel – -I believe called and ADH panel and I will get it back next week and then he wants to send me for an MRI. It was also shown that my thyroid is now overactive again even though technically I am not supposed to have a thyroid.

    What are other options or other tests I should ask for. The doctors seem so confused with what is going on with me because with regard to the autoimmune diseases it is confusing. The third endocrinologist I have been seeing came highly recommended because he is used as an expert witness related to autoimmune disorderes in court cases.

    Thanks for any help or guidance.

    • ANSWER:
      This sounds like a case study that I had in gross anatomy. I am not a doctor but I have several med school classes and several classes associated with immunology. In the case that I had the 40 year old woman had a small tumor on her pituitary gland and she was being treated for graves disease, thyroid problems, and was having issues associated with diabetes. I would recommend that you seek the advice of an oncologist or rhumitologist (dont know if this is the correct spelling). If by chance it turns out to be a tumor on your pituitary gland the surgery to remove it is a fairly simple and effective surgery. I wish I could be of more help, but maybe this will give you something to check in to. I wish you the best and hope they can get it figured out.

  34. QUESTION:
    Hypothyroidism question for experts.?
    Why would my ANA ( antinuclear antibodies, an autoimmune disease) be negative, yet my thyroid peridoxase antibody test be so high, 221 with normal range being less than 35? This 221 shows I possibly have hoshimoto’s, but then why wouldn’t my ANA be positive if I have antibodies supposedly attacking my thyroid. Doesn’t make sense to me.

    • ANSWER:
      Take a look at this study…there’s a small percentage like you

      http://www.ncbi.nlm.nih.gov/sites/entrez?db=pubmed&list_uids=17519851&cmd=Retrieve&indexed=google

      Do you have lupus by any chance? What is your TSH level? Free T4?
      This can explain your high TPOAb levels: http://www.medicinenet.com/thyroid_peroxidase_test/article.htm

      I’ll try to come up with more…I have to check my notes that are stored on my other computer from school a few yrs. ago.

      Feel better!

      P.S. Are you currently on any meds? Receiving any treatment or just newly diagnosed?

  35. QUESTION:
    Why do some people with autoimmune diseases have a problem with supplements that strengthen the immune system.?
    My husband has Grave’s disease. He was put on methimazole (tapazole) to combat the hyperthyroidism. He’s been on it for over a year now, starting at 30 mg., then 20, then 10, then 5, back to 10 and then off the medication. The medication controlled his symptoms but the thyroid stimulating hormone level was virtually zero for a long time. Then on the last two blood tests, while taking 10 mg. the hormone level was in the normal range for both the T3 and T4. This gave us hope. Then the doctor told my husband to go off the medication and come back in one month. In just one month the levels changed drastically – zero, and high (showing hyperthyroidism again). When trying to figure out why going off a low dose of the medication would have such a drastic effect, we remembered that we tried a new supplement that is supposed to greatly inhance the immune system. Grave’s disease is an autoimmune disease. I heard that the medication (tapazole) actually suppresses the immune system. We are now thinking that the new supplement that my husband was taking messed up my husband’s thyroid levels. Why is this so? And is there any other natural treatment for this disease?

    • ANSWER:
      Autoimmune disorders are caused by the immune system being hyperactive in a way – instead of attacking germs, they attack the body. Taking something to INCREASE the immune system is the last thing that someone with an autoimmune disorder would typically want to do….especially anything that increases macrophagic*** activity…

      So yes, suppressing the immune response – would be what you want to do…

      Stop taking anything that would increase immunity for 3 months and then follow your doctors suggestion for the hormone titration.

      *** macrophages are part of the immune system that stimulate interleukin-1, it sounds the trumpet for the immune system to be on high alert – and in the case of those with autoimmune disorders, that means a sharp increase in symptom aggravation.

      In case you want to learn more…

      http://en.wikipedia.org/wiki/Macrophage

      Herbs that would do that include Astragulus, echinecea, guggul, nettle, (and gobs of others), and vitamins A, C and Zinc, and the amino acid arginine – those are just off the top of my head. Sorry about the spelling – its way past my bed time.

  36. QUESTION:
    What is going on? ( will choose best answer!)?
    For the past 6 or so months, I have had extreme fatigue, very easy bruising, also I had very low sodium at one point, but the last time they checked it went back up due to a medication I took for a short period of time (Florinef, for Addisons Disease.) Although, when I took it , my Aldestrone was lowered ( it was high before) but my Renin went up , so I was take off of it. My sodium however went back to normal. I was tested because I had dizziness when standing/laying down. I also had an absent menstrual cycle for almost two years, and am now on a birth control and finally have periods.

    What could be wrong? I am convinced it is an autoimmune disease. I have researched everything- I have an appointment with a new Endo, but it is not till Sept 15th. I intend on asking him to test me for everything possible.

    So here is a short list of the symptoms I had in the past 6months/or longer:
    SEVERE fatigue
    No menstrual cycle without birth control
    LOW sodium
    Easy bruising
    Also, I have recently had a boil that is very painful on my thigh.

    Thyroid diseases, and most adrenal diseases were ruled out, also pituitary diseases. So anything else would be helpful.

    Thanks.
    no im not, it is healthy to loose 70 pounds when you were 70 pounds overweight :) , and I am 18.

    • ANSWER:
      Hepatitis can do that to you.
      Check your pancreas, Kidney, Spleen, and most of all Liver.

      I have hepatitis and am in almost the same condition. I happen that I found on regular check up that I had hepatitis B. I believe that I contracted that working in fishing boats in Alaska.

      Too bad, life… the point is Doctors are also driving me crazy. They say everything is fine but in reality all my tests come out with some problems and yet they say everything is normal..

      So, my best suggestion: keep checking and asking questions…

  37. QUESTION:
    What could it be? ( will choose best answer.)?
    For the past 6 or so months, I have had extreme fatigue, very easy bruising, also I had very low sodium at one point, but the last time they checked it went back up due to a medication I took for a short period of time (Florinef, for Addisons Disease.) Although, when I took it , my Aldestrone was lowered ( it was high before) but my Renin went up , so I was take off of it. My sodium however went back to normal. I was tested because I had dizziness when standing/laying down. I also had an absent menstrual cycle for almost two years, and am now on a birth control and finally have periods.

    What could be wrong? I am convinced it is an autoimmune disease. I have researched everything- I have an appointment with a new Endo, but it is not till Sept 15th. I intend on asking him to test me for everything possible.

    So here is a short list of the symptoms I had in the past 6months/or longer:
    SEVERE fatigue
    No menstrual cycle without birth control
    LOW sodium
    Easy bruising
    Also, I have recently had a boil that is very painful on my thigh.

    Thyroid diseases, and most adrenal diseases were ruled out, also pituitary diseases. So anything else would be helpful.

    Thanks.

    • ANSWER:
      could be any number of things, HIV, Lupus…you need complete blood work and various tests. It is good that you are going to a new Dr.

  38. QUESTION:
    Diabetes and Your Thyroid?
    We all know that diabetes and thyroid disorders are both endocrine diseases and frequently autoimmune. Is it common for type 1s to also develop thyroid problems? I saw my endo yesterday and while everything was just fine (office blood sugar was 114 and I use a pump), my doctor took notice of my enlarged thyroid (something I never noticed). He asked me if I had gained some weight and I told him I had gained about 7 pounds in the last 6 weeks and my doctor also saw that my skin was really dry.

    Now, I have a appointment for a whole lot of blood work (mostly thyroid and vitamin levels, along with the usual metabolic panels, blood count and A1C). I was tested for thyroid problems about 12-13 years ago and while my levels were slightly out of range, they were nothing to be concerned about.

    So…hmmmm. I guess I’ll wait fot the bloodwork to come back and see if I need to be adding Synthroid to my daily medications. Oh well.

    EMT

    • ANSWER:
      There is a higher prevalence of hypothyroidism in diabetics.

      My daughter’s thyroid is checked annually.

  39. QUESTION:
    could i have a thyroid problem?
    I’m wondering why I’m not losing weight. You might be thinking (um, let’s see. Let me guess, you don’t exercise and you eat like crap), really that’s not the case. I play tennis, and I run 2 miles about two-three times a week. My average day consists of 2 eggs for breakfast, an apple, almonds, and veggies for lunch, banana and a few almonds for snack, an extremely light dinner of protein and veggies, and every now and then low fat frozen yogurt. Really, that’s it. I’m active. I play sports. I exercsie. Why can’t I lose weight?

    I researched a little about thyroid problems. My family has Celiac Disease, and i have the gene, so that’s an autoimmune disesase. Most of the other symptoms don’t seem to affect me. I mean, I get really cold when it’s hot and hot when it’s cold. Thyroid disease does not run in my family but I do gain weight inappropriatley. I often have joint pain in my ankle, but it’s not really anything crazy. My menstrual cycles are the most irregular ones I know, and i’ve had it for over three years. I’m really forgetful, shortness of breath, and I think I have very moderate tinnitus (especially when I’m tired or when I’m in a load room). I mean, most of those symptoms can be just coincedential, but what do you think? Should I get tested for hypothyroidism?

    • ANSWER:
      Have your thyroid levels run… TSH, Free T3, Free T4 and thyroid antibodies.

      Having one autoimmune disorder leaves you with a higher risk of developing others.

      I’m also seeing that you might be undereating.. if you don’t eat enough food you can drop your metabolic rate to the point of causing your body to conserve calories, causing a weight gain. This is especially evident in folks that are dealing with low metabolic rates due to hypothyroidism… and can actually trigger poor thyroid gland function due to insufficient calorie intake OVER LONG PERIODS OF TIME to affect thyroid hormone conversion.

      In folks with normal thyroid gland function, undereating causes weight loss to plateau… where weight loss stops.

      Getting the tests run will let you see where things are.. if it turns out your thyroid gland is truly fine, with proper TSH level and proper thyroid hormone levels, and no antibody… .then you can explore other possibilities from there.

  40. QUESTION:
    Is it possible to have fibromyalgia without tender points?
    I have so many symptoms of it, it really started about 2 months later after having a flu like illness. I’ve had a CBC done, my sed rate checked, urine samples, stool samples, mri’s, ct scans, an HIV test (negative), electrolytes, thyroid, and a panel for celiac disease. Everything has come back normal. Onetime my WBC count was a little elevated (10.9), I had a fatty tissue in my head, but it had disappeared later and my celaic AGA levels were a little high, not too much. But I heard AGA tests aren’t even that reliable because they’re wrong a lot of the time. I had the HIV test done 7 months after getting cut at a manicurist’s and 3 months after one of my friend’s drank out of my soda can’s. I’m very paranoid about catching stuff. I even had an ANA screen done (antinuclear antibodies) to check for any presence of autoimmune diseases. I did get diagnosed with ehlers danlos syndrome (classical type) and I heard people with EDS can also develop FMS. So, is it possible to have fibromyalgia
    without any tender points? Thanks!

    • ANSWER:
      yes it is possible to have FMS without the doc finding TENDERPOINTS (not trigger points)

      this may be because the doc was a half inch off—I have not found a doc that is accurate at finding tehright spot–they will press-I’ll be fine–but if tehy move over a half inch-it’ll hurt..

      you need to address your mental helath issues before you even consider a fms diagnosis–HIV isn’t spread by sharign a soda can….

      i looked up ehlers danlos syndrome —it’s the symdrome itslef that is probably causing your symptoms—not another condition

      FMS is highly overdiagnosed by doctors who use it as a general label for pain..

      one thing you didn’t mention was a complete work up for MOno

      I had it for 3 months before a doc did a blood test–you need teh full mono panel (past infection, current, recovering) not teh simple positive negative test)

  41. QUESTION:
    Why am I always lightheaded and why do stores make it worse? HELP?
    I am re-posting this to a different section so that hopefully I can get more answers.

    Okay I am 20 years old (female), I am average weight (average BMI), I eat good, drink plenty of fluids including water, and sometimes when I am up to it I also exercise.

    I understand that this should be something to take up with a doctor but I’ve been without health insurance for quiet some time now and the last doctor I saw couldn’t diagnose it. I am just now hopefully going to be getting insurance again and wonder where I should start in terms of what to narrow down.

    What happens is I am lightheaded pretty much 24/7 to some degree…but it gets worse when I am up and about like making dinner or doing something else. When I go outside it gets worse…or when I go to stores or any other public place it gets so bad that I start to see black and feel very faint…I never have fainted but it feels like I really am going to! It all started in a grocery store 2 years ago out of NOWHERE I started to see black off and on and felt like I was going to pass out. Ever since then I have not been able to go into stores or other public places. I feel best when laying down.

    Is it the lighting? The people? I noticed that in areas of stores where there is a ton of stuff to look at on the shelves is when it is the WORST. Could it be my eyes?

    I am trying to narrow it down…and so far the only three things that make sense are Anxiety, Blood Pressure, or my eyes.

    I have Graves’ Disease which is an autoimmune disease that attacks the thyroid and causes hyperthyroidism. It is currently being treated and taken care of.

    I am on anti-anxiety for it but it doesn’t help at all…
    The only thing that helps (before my eyesight got bad) I wore sunglasses which helped me to not focus as much on things.

    I have had so many tests done, MRI of the brain, tilt table test, 24hour holtior monitor of my heart, tested for vertigo, tested for seizures, tested for diabetes, eyes have been checked (I have astigmatism) and tons of other blood work.

    I still want a couple more tests done (stress test, ferriten, and to see if I am anemic.)

    What the heck could this be?!?!

    I want nothing more than to be able to just go somewhere and eat or go shopping…the simple things again. It’s been too long that I have had this and doctors scratch their heads.

    The anxiety doesn’t make sense since I also get it when I am home alone with nothing to stimulate anxiety…and I feel calm and happy. However, when given Vicodin for pain one time it helped me a little bit which would make sense since it calms you;

    Thanks for your time!

    • ANSWER:

  42. QUESTION:
    Can you suffer from an under active thyroid without gaining weight?
    I haven’t been officially diagnosed with Hypothyroidism, but I have a lot of the symptoms (fatigue, sluggishness, low immunity to illness, swollen throat and carpal tunnel syndrome), however I have never really had a problem with my weight! It can fluctuate but only slightly, is it possible to suffer from Hypothryroidism without weight gain?

    I am a student and I had a load of blood tests at the end of last term, one of which said that I had something wrong with my thryoid, but I thought I would wait until I go back in September to see the doctor again rather than re-register in my hometown. Does anyone know whether it’s dangerous to go without treatment? Because I have been feeling rapidly worse in the last week or so, I’ve barely got out of bed the past two days! It was only a few months ago I developed carpal tunnel sydrome and today I woke up with a puffy face! :-(

    Oh one more thing, my sister suffers from Systemic lupus erythematosus (which is an autoimmune disease) -is that relevant?

    Any help would be really appreciated! Thanks :)

    • ANSWER:
      Yes it is possible. Weight gain is just one of the symptoms of an underactive thyroid, different people experience different symptoms. It may be that your metabolism is still going at a steady rate because of your young age. Do you have cold intolerance at all??

      It is relevant that your sister has SLE because different types of autoimmune disease can run in families. Certain forms of hypothyroidism can be from an autoimmune cause.

      If I were you I would go to your doctors at home. You shouldnt need to re-register, you can just sign in as a tempory patient. It doesnt sound fun being stuck in bed, and the right treatment can help you and make you feel 100% better.

      If I were you I would want to know what the thyroid results were and see that it is undereactive. It might be worth calling up the place where you had blood taken and see if they can give you any info over the phone. You GPs at home should be able to start you on thyroxine if that is what you need, and then your GPs at uni can take over the treatment. Good luck!

  43. QUESTION:
    High bilirubin and high AST on blood test…?
    I don’t remember the exact numbers but for bilirubin, the maximum reference range was 23 whereas I got 59. Not sure about AST but it was similarly as high compared to its reference range, maybe double or triple, can’t exactly remember.

    My symptoms include jaundice, thinning hair and possible low weight. This is probably Gilbert’s disease but the AST increase and the symptoms don’t match.

    I’m currently getting an ultrasound done, but does anyone know what it can be? I’ve searched the internet and it said that it might be autoimmune hepatitis. I’ve had a lot of blood tests done, including thyroid, rbc, hepatitis, iron, and all came out fine.

    Thanks.
    Hep A, B -> immune
    Hep C -> negative

    • ANSWER:
      Sounds like some symptoms of hepatitis… maybe you should be re-tested.

  44. QUESTION:
    I tested positive for scleroderma 4 times!?
    I went to the doctor over a year ago complaining of aches & pains throughout my body, & joint pain,some other symptoms I had were- dizziness,muscle weakness, headaches,fatigue, swelling in feet,ankles,hands,& fingers, numbness & tingling in hands & feet,dry eyes, hands turn colors with cold or stress,hair loss, really bad heartburn, bouts of diarrhea then constipation & maybe some others but thats all I can think of right now. So anyways she did an ANA test on me & the only thing that came up positive was anti SCL-70 which she said it means I could have scleroderma.She wanted to make sure it wasn’t just a false positive, so she took it again a couple weeks later, still positive.So she sent me to a rheumatologist. He did no other testing just poked me with his fingers a bit in certain areas then said I have fibromyalgia. I was confused why I tested positive for scleroderma then he says its just fibromyalgia. My doctor didn’t agree either, so she sent me to a different rheumatologist, he talked to me for a little bit & also poked me in places to see if it hurt, but then he said he thinks it is just fibromyalgia. He explained that if you have another autoimmune dieases you can test positive for a different one, therefore it can be a false positive. He said since I have thyroid disease thats why it might have came up positive for scl-70. They also said they didn’t see any physical symptoms. Hmmm so I’m really confused now.So I asked my doctor to take one more test to make sure it was still positive & of course it was. But I trusted them. So I went on with my life. Months later I just kept feeling more sick, so I went back to my doctor she did another test for ANA & it came up positive again for SCL-70. But there are no other rheumatologists in my town that take my health ins. so I’ kinda at a dead end. I’m confused, My anti scl-70 was 203..I don’t know if that’s a high or low positve. Anyone with answers please help! Thanks :)

    • ANSWER:
      Bobbie,
      Systemic sclerosis – SSc -can be difficult to diagnose as it can develop gradually and can take different forms. About 60% to 90% of those with scleroderma – systemic sclerosis – have a positive Antinuclear Antibody test – ANA – finding. In people who may have this condition, ANA subset tests can help distinguished two forms of the disease, ‘limited’ versus ‘diffuse.’ The diffuse form is more severe. Limited disease is most closely associated with the anticentromere pattern of ANA staining (and the anticentromere test), while the diffuse form is associated with autoantibodies to the anti–Scl-70. This appears, from your comments, to be related to your test results. Anti-Scl-70 positivity is useful in predicting those at higher risk for diffuse cutaneous involvement and interstitial fibrosis/restrictive lung disease, (although the latter has not been universally observed). In some cases, because Scleroderma causes hard areas of skin, your doctor may order a skin biopsy to aid in or help confirm a diagnosis. However, skin biopsies have their limitations, for example, a biopsy cannot distinguish between localized and systemic disease. As mentioned above, the systemic sclerosis type of scleroderma can also affect internal organs as well as the skin. There are many possible symptoms and problems that may develop with systemic sclerosis because the extent and severity of the disease can vary greatly from person to person. People with systemic sclerosis should have regular monitoring of blood pressure, blood and urine tests, and lung function, and should report any unexplained symptoms promptly to a doctor. Systemic sclerosis cannot be cured, but there are various treatments which can help. Newer treatments have improved the outlook for this condition. You would be advised to research a doctor who specialises in this subject and, if it is not your specialist/doctor, endeavour to obtain a consultation. I wish you well.

      ALL ANSWERS SHOULD BE THOROUGHLY RESEARCHED, IN ANY FORUM AND ESPECIALLY IN THIS ONE. – MANY ANSWERS ARE FLAWED.

      It is extremely important to obtain an accurate diagnosis before trying to find a cure. Many diseases and conditions share common symptoms.

      The information provided here should not be used during any medical emergency or for the diagnosis or treatment of any medical condition. A licensed physician should be consulted for diagnosis and treatment of any and all medical conditions.

      Hope this helps
      matador 89

  45. QUESTION:
    Why can’t I stop feeling this way? Am I depressed?
    Lately, I’ve been very depressed. I’m normally very optimistic and over all enjoy life, see the silver lining. But i just can’t seem to be happy without faking it these days.

    It started about three weeks ago. I was very ill and went to doctors, expecting that i was over-reacting. But the doctor seemed very concerned about my symptoms and ordered tests for some very scary diseases, (including diabetes, autoimmune diseases, hepititus, cancer, thyroid problems, syphilus, STDs etc and worst of all, HIV). Looking up the symptoms online, its seems possible I could have any of those diseases, especally HIV which fits my symptoms perfectly. (the only reason why i’m not completely convinced yet is because I ALWAYS use protection, but sometimes condoms fail i guess…). Not only am i very concerned, but also very embarrassed. I feel so dirty and disgusted with myself. I wont be getting the results for another two weeks.

    Also, school has not been going very well. I lost my passion for my major, I always feel too tired or distracted to go to class, and ive started getting panic attacks in class (I have an anxiety disorder).

    Also, in august, my intense romance with a guy who i knew had a girlfriend, came to a terrible end when everything went wrong and he felt guilty cheating on her. I was so in love with this guy, and i know the feelings were mutual but he lives in another country (I met him here, then went to visit him there), we knew it couldnt work anyway living so far apart, but we decided to stay friends, because who knows what could happen in the future. But three weeks ago he stopped emailing me, just like that. I am so heartbroken, ive never loved anyone so much before.

    My friends are always busy with their boyfriends, school or work, I feel like I annoy them when i ask them to hang out, and i feel like they only see me out of pity.

    I haven’t had sex in over two months (guy above was the last). I feel so unattractive these days, stress has caused me to break out, and I have no interest in guys who hit on me, only those who i cant have. Ive never felt so ugly, incompetent, dirty, and undesirable.

    Yet, i just book a trip to Peru, my dream destination. I would have killed for this chance, and now… im barely excited. Whats wrong with me? What can i do????

    • ANSWER:
      Having helped a lot of friends get through Collage stress, it seems that is probably what you have. With the intense requirements for post-secondary education, a lot of people have great difficulty dealing with everything else going on in their life and the stress boils over.

      My best advice is to understand that this is likely what is going on, and that all those bad things you think about yourself aren’t true, you just haven’t had time to fully deal with other situations recently. Focus on your degree for now, and know that once you have it, you will have plenty of time to work with the other factors AND a good education to use as a foundation for your future.

      When you compare yourself to others, realize that you are likely focusing on some of their best traits. You’re probably overlooking many of the things they have sacrificed in order to obtain those things.
      Instead of focusing on what others are good at, you should think about what YOU are good at (if you’re in post-secondary and able to travel to Peru, you’ve obviously got something going *very* right).

      As for the medical issue, don’t sweat it. Doctors often test for a wide variety of possible problems, even if the chance is remote. As for thinking the symptoms are similar to HIV, there is one other thing I’ve seen with similar symptoms: College Stress. =p

      Edit: Your school likely has a special service for helping students deal with stress, you should give them a call.

  46. QUESTION:
    Is it depression, avoidant personality, anxiety, or…?
    Lately, I’ve been very blue. I’m normally very optimistic and overall enjoy life. But i just can’t seem to be happy without faking it these days. I feel like avoiding everything, and i am experiencing generalized anxiety and panic disorder (which i was diagnosed with), and starting to get agoraphobia as well. Not to mention health anxiety…

    It started about three weeks ago. I was very ill and went to the doctors, expecting that i was over-reacting. But the doctor seemed very concerned about my symptoms and ordered tests for some very scary diseases, (including diabetes, autoimmune diseases, hepatitis, cancer, thyroid problems, syphilis, STDs, miscarriage and worst of all, HIV). Looking up the symptoms online, its seems possible I could have any of those diseases, especally HIV which fits my symptoms perfectly (except i always use protection). Not only am i very scared, but also very embarrassed. I feel so dirty and disgusted with myself. I wont be getting the results for another two weeks.

    Also, school has not been going very well. I lost my passion for my major, I always feel too tired or stressed to go to class, and ive started getting panic attacks in class. I feel like dropping all my classes and locking myself in my room and never coming out.

    Also, in august, my intense romance with a guy who i knew had a girlfriend, came to a terrible dramatic end when everything went wrong and he felt guilty cheating on her. I was so in love with this guy, and i know the feelings were mutual but he lives in another country (I met him here, then went to visit him there), we knew it couldnt work anyway living so far apart, but we decided to stay friends, because who knows what could happen in the future. But three weeks ago he stopped emailing me, just like that. I am so heartbroken, ive never loved anyone so much before, and i feel like i must have done something so wrong if he lost interest in me, and i cant stop obsessing over it. What was it that i did wrong?

    My friends are always busy with their boyfriends, school or work, I feel like I annoy them when i ask them to hang out, and i feel like they only see me out of pity. I feel so lonely.

    I haven’t had sex in over two months (guy above was the last). I feel so unattractive these days, stress has caused me to break out, and I have no interest in guys who hit on me, only those who i cant have. Ive never felt so ugly, incompetent, dirty, sleazy and undesirable.

    Yet, i just booked a trip to Peru, my dream destination. I would have killed for this chance in the past, and now… im barely excited. Almost apathetic. Whats wrong with me? What can i do????

    • ANSWER:
      Aww… :(
      I almost cried reading this – you’re not having a good couple of months are you? With the first part – it does sound like depression. And because you were sick before all this started it’s more than likely “Post-viral depression”. Best thing to do is see a psychologist. They will be able to diagnose you.
      With the panic attacks – please, please try and slow down your breathing. I suffer from anxiety and the best thing to do is when you start to feel the sensation of a panic attack – slow your breathing down. Deep breaths in and out. Try and concentrate on having 5-6 breaths a minute. This will help.
      You should see a psychologist – because it will help you with your stresses anyway. Try and be more social, and maybe exercise – even though you feel like doing nothing. It’s best to break your thought pattern of wanting to be alone. Because it doesn’t help.
      With the guy thing – I’m sorry. I can’t imagine going through that. But if he didn’t want to choose you, then honestly, you deserve better. You deserve someone who will choose you over everyone and everything. And you will find that person one day. Best revenge is to keep on living and living well. Broken hearts do mend. Just try to think of the good things that came out of the experience, and how much you learned. But I know it will be shit for a while.. :(
      And with the breaking out thing – try “Clindatech” it really, really, really helps. I don’t even get pimples anymore because of it.

      I don’t know what to say that will make you feel better, but I do think you could have depression. It’s common, but serious and treatable. See a doctor or a psychologist, because it’s best to know what you’re up against. I’m sorry for everything that’s happened to you lately. Peru might be just what you need. Time off in a different place. (:

      Best of luck x

  47. QUESTION:
    Need advice desperateley?
    Hello..I’m female and 30 yrs old..I fell ill at 21 and was diagnosed 2yrs later as having a borderline lyme test and systemic disease..major neurological symptoms..brain fog..raynaueds..horrible headaches like never before..new onset siezure activity and a brain spect scan consistent with severe neuro lyme or severe cns lupus..up til now my lupus tests negative…been seeing a reumatologist internist who is a lyme speciast..recently have develped alopecia..severe joint bone pain my sed rate has been up for months now which is new and elevated platelets for yrs..have been told protein was found in urine on 2 occasions haven’t done a urinalysis lateley..my dr said based on my recent elevated sed rate and high platelets and supposidly some abnormality on autoimmune panel was pos..the nurse that called and told me was sweet but when I asked her if she knew what autoimmine disease it was she wasn’t really givin me a straight answer..dr called in methltrexate which scares me…very potent drug…reumatiod arthritis neg, thyroid neg, seems all the peices are adding up to lupus???any1 have any thoughts..I see her again in 2 weeks..wish I knew now being sick 9 yrs without a dr lookin me in the face with a straight up answer is hell on earth…any input..with my abnormal brainscans and abnormal bloodwork as well as clinical findings and symptoms…do you think she’s barking up the wrong tree still treating the lyme when most likely infection is gone and per her suggestion has triggered an autoimmune disease most fitting…lupus???

    • ANSWER:

  48. QUESTION:
    How accurate are HIV tests after 7 months?
    Back in may of 07, I got cut at a manicurists. So in december of that same year, I had an HIV test. I got my results on january 17th, it was negative. I’m asking this because, for about a year now, I’ve been experiencing abdominal pains, diarrhea/constipation, sometimes when I go to the bathroom, all that will come out is this fatty mucus stuff, not even stool. I also have been getting chronic fatigue, body aches, muscle cramps, tingling in my extremities, the scale says I haven’t lost anything, but my clothes are noticeably looser, depression, anxiety, joint pain, ataxia (loss of balance), and a whole bunch of other things. My celiac levels were slightly elevated, as was my WBC count. My blood pressure was a little low. Someone also mentioned the possibility of candida overgrowth. I do have a lot of the symtoms for that. What causes candida overgrowth? I heard that the overuse of antibiotics can cause it sometimes. I took some antibiotics in march last year for an ear infection.

    * 33 minutes ago
    * – 3 days left to answer.

    Additional Details

    29 minutes ago
    If it’s candida, could that have caused it? Do people only with HIV/AIDS get candida? I’ve also been extremely stressed, mainly becuase I haven’t been feeling good. I’ve always gotten dizzy spells and vomiting episodes ever since I was little. Maybe it was an autoimmune disease that’s just starting to get worse? Anyway, do you think my test results were accurate or false? I WAS after 7 months that I had the test done. What tests do they do to check for candida? I’ve already had a stool sample done and a urinalysis because I keepy feeling like I’m getting infections down there and stuff. My appetite isn’t like it used to be. My allergies are worse as well. Thanks for any help you can give me!

    28 minutes ago
    I also get gurgling in my throat, heartburn, and gurgling in my rectum when I’m about to get that mucus stuff.

    10 minutes ago
    I haven’t had a fever (knock on wood), I have have about 3 or 4 cbc’s done, my throid levels checked. I had a CT scan and an MRI scan of my head in june of last year. Everything was fine, until last december when I had that last blood count and my WBC count was a little high. Then in late february, when I had my thyroid and celiac levels checked, that’s when they found that my celiac levels were a little elevated.
    My stool sample showed absolutely nothing. I’m still waiting for the test results of my urinalysis/urine culture. The doctor said that they would call over the weekend if anything looked abnormal (but they didn’t call), he also said they would call on monday, abnormal or not. But nobody ever called.
    I’ve been to the gastroenterologist, and he was the one who thought of testing my celiac levels. He wanted to do an endoscopy and a colonoscopy, But I’m paranoid about how they sterilize tools. I’m seeing a doctor to get more blood drawn on the 3rd.

    • ANSWER:
      Your celiac is acting up or you have developed another intolerance or sensitivity. Have you dropped lactose or soy from your diet? You may have an independent sensitivity that you have not addressed. Stop trying to figure it out yourself and get ye to the gastroenterologist!!!
      I just re-read this, YOU HAVE CELIAC or at least gluten sensitivity. Get yourself to a gastro and/or allergist!!! NOW!
      and at 7 months post minimal potential exposure, you are prob. negative. Give it a rest and re-test at a year. Are you eating gluten free? have you had an endoscopy? What are your ttg, iga and igg numbers?
      Yahoo is no place for this, you need to see a gastro asap!
      Are you out of your mind? Do the endo at the very least. This all sounds like celiac to me. You should NOT be eating gluten, lactose,or soy at this time. How can you go to an GI doc and then continue to suffer when the answer to it all is one minor procedure away. You are doing nothing but delaying your recovery! Candida overgrowth or leaky gut is one of those grey areas, besides, you need to have another condition to even consider that as an issue.
      Go on a gluten and lactose free diet, go back to the GI, find out if it is IBS, colitis or Chron’s. You are doing yourself no favors by using the sterlization techniques as an excuse for not getting diagnosis.
      After that, get some help for your paranoia, although I am sure you are loving the attention you are getting for all of this.

  49. QUESTION:
    Does anybody have dermatitis herpetiformis, and what is it like?
    I have been tested for Celiac Disease and lab work and biopsy/endoscopy results were “normal.” However, the doctors agreed that befored I ate gluten free I had the classic symptoms of Celiac Disease. However, sometimes worse than the constipation and bloating, when I ate gluten (or if i accidentally consume it), my hands and elbows start blistering or turning REALLY raw red. If it becomes more widespread my buttocks and scalp will do the same. Sometimes my knees would itch as well. This is not the type of itching that could be soothed with some sensitive skin lotion, but it would feel like a BAD sunburn or like I sat in acid! Sometimes my scalp and hands would bleed. There would also be some mini- chickenpock like bumps that I could easily scratch off. I am 18, and this began around the age of 16. My grandfather had been type ONE diabetic, and I have a strange thyroid problem. There is a possibility that I have some other kind of autoimmune disease (RA, Lupus, ?). So… do any of you have Dermatits Herpetitformis, how were you diagnosed, and what does it look/feel like?

    • ANSWER:
      The locations, elbows and buttocks are suggestive of dermatitis herpetiformis. It is the rash, very itchy, that occurs when you have an allergy to gluten and accidentally ingest some. Even with negative tests on endoscopy you can confirm the diagnosis with a skin biopsy. See the dermatologist. Avoid gluten. There is a medication available to help with the rash until the gluten clears your system.

  50. QUESTION:
    What kind of specialist should I see for the following symptoms:?
    I’ve had the following symptoms for a while now. My general practitioner isn’t cutting it, and I’ve been negative so far for thyroid (hyper and hypo) problems, lupus, fatty liver disease, and diabetes. I’m at the end of my rope. If there is ANYONE out there who has similar symptoms and got help, can you please point me in the right direction?

    Severe Eczema (Since Birth, better with age, worse in winter)
    Severe allergies (Since Birth) (to food like fruits, veggies, and seafood. Meds like penicillin and sulfa, lots of different trees and plants, latex, and pet dander)
    Stunted height (grew very slowly, only 5’2″)
    Rapid weight gain, inability to lose weight with proper diet and exercise (since my teens)
    Depression, and generalized anxiety disorder (Since my teens, worsens as I age. GAD was misdiagnosed as major depressive disorder for a long time)
    Migraines (intermittent, started in my teens)
    Fatigue (10+ hours of sleep per night)
    Gastrointestinal (I’ve always had constant gas. I get diarrhea very easily. Stomach aches give me severe headaches and will make me vomit)
    Insulin resistance (recently diagnosed)

    For a while, my thinking was that the depression and anxiety was causing an inability to deal with stress, which in turn caused the weight gain, and fatigue, and made my allergies/eczema worse. Then I couldn’t lose weight for the life of me, and since my family has a history of autoimmune disorders, that led to the thyroid testing. Now I’m getting this insulin problem, and my doctor is telling me that I need to lose weight or risk becoming diabetic. But I still can’t lose weight. See the conundrum? The most recent suggestion is that I might have celiac disease, but I looked it up and it seems to mainly have gastrointestinal symptoms, which I have very little of (just the persistent gas, really)

    Anyone have a suggestion? Anyone?

    I’ve had my thyroid checked. Also seen a rheumatologist (had joint pain for a while, but it was chalked up to the rapid weight gain). I also see my allergist and dermatologist regularly, they’ve been the same doctors since birth.

    I thought the allergies and eczema were just hereditary conditions unrelated to anything else until it was recently suggested that I include them in my list of symptoms to see if it narrows down my search, because apparently allergies and eczema can often indicate other disorders.

    • ANSWER:
      An Immunologist would test you to find out exactly what foods and other factors you are allergic to and therefore do not eat or avoid.

      An Endocrinologist would check your thyroid out really well and also advise you about the insulin problem.

      A specialist in Bariatric Medicine is the type of doctor who treats obesity. They use dietary/lifestyle changes and exercises and sometimes medicine in their treatment options.

      However before you contact any of them why don’t you read this book extract in Google Books :

      ” The Inflammation Cure”, by William Joel Meggs, an Immunologist in America. Chapter 9 is the chapter that deals with dietary factors.

      Dr Meggs recommendations are :

      *to NOT eat wheat (found in breads, packet cereals, prepared sauces etc, cakes and biscuits). Doing this alone will stop the wind problem and start you losing weight. Alternatives to wheat are rye crackers, rye bread, spelt bread etc; oats for breakfast cereal.

      * DO NOT have dairy products except maybe pot set natural yoghurt which has beneficial bacteria for easy digestion. Alternatives to cows milk – goat milk, water or soy milk.

      * Lean red meat – beef as it is the best source of protein and iron. Once a week.

      *Oily fish for protein and Omega 3 Oils

      * Approved fruits and vegetables that YOU are NOT allergic or intolerant too.

      *Nuts and seeds that YOU are NOT allergic or intolerant to.

      *No junk food, no bought preprocessed foods.

      Good luck